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Update: Arlene is getting some sensation in her right hand. She can actually feel enough to pick a jellybean out of a bag. This is a great improvement. Left hand still has absolutely no sensation of touch or temperature.
She is in a nursing facility now, only about a half hour away, and it is joined with an assisted living facility, so it feels less hospital-ish. When they feel she can get out of bed, she will be able to go to a nice dining room. Hopefully that will be soon.
Thanks again for the prayers and positive vibes.
Bob
Bob "Notes" Norton  Norton Music
https://www.nortonmusic.com
100% MIDI Super-Styles recorded by live, pro, studio musicians for a live groove
& Fake Disks for MIDI and/or RealTracks
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Update:
The hospital people are going to take her home on Thursday (12/15) to test and evaluate her to see if she can live at her home. If she passes the test, she'll be home for Christmas.
This is great, because the nursing care facility is about a half hour away when the traffic is light, and her home only 10 minutes away. It will make our job of care-taking much easier (not to mention the savings on gasoline for the car).
Work on the disks is slow but steady, putting in every minute we can. Hopefully early next year.
Thank you for your patience and for all your prayers for Arlene.
Bob
Bob "Notes" Norton Norton Music
https://www.nortonmusic.com
100% MIDI Super-Styles recorded by live, pro, studio musicians for a live groove
& Fake Disks for MIDI and/or RealTracks
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Best wishes for success on Thursday, Bob. Step back from the disks, a bit, and enjoy the holidays to the extent that you can. Pauline and I are playing a gig everyday at some retirement home or school. The folks' enjoyment makes it fun for us. Merry Christmas to you and yours!!
Cornet Curmudgeon
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Glad to hear everything is going well Bob and Happy Christmas to you. Looking forward to the new disks  Musiclover
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Thanks. Complications, the doctor signed release forms but the 'intensive nursing care facility' is releasing her "against medical advice" - hopefully that's just a CYA phrase for lawsuit avoidance (Arlene wouldn't sue anyone anyway). She has been in hospitals/recovery/nursing for 8 weeks now and is mentally more than ready to be home. We went to her apartment yesterday, I installed 2 phone extensions so she will always be near one, we picked up scatter rugs and anything else she can trip on, cleaned it up, and stocked the refrigerator with easy to prepare foods. I guess we'll be spending some time there until we feel confident she can manage by herself. Spinal cord surgery is a 'pain in the neck'  (can't lose our sense of humor) Bob
Bob "Notes" Norton Norton Music
https://www.nortonmusic.com
100% MIDI Super-Styles recorded by live, pro, studio musicians for a live groove
& Fake Disks for MIDI and/or RealTracks
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We spent a lot of time designing my 2 spots when I had the stage IV cancer thing.
An easy chair I could get out of, changed all the bedroom, bought those wireless phones. (I always said if you are too FREAKIN lazy to get up and walk to the phone I'm SORRY!) Old cranks can change their mind, but I tried that once and they took the phones to their bedrooms and we needed the Search and Rescue people to find them...
It's hard to predict things. We had to take up some rugs. I needed a pair of tables and a powerbar for my computer(s) by my chair and bed, I had a laptop both places, reading glasses, lamps. You don't think of that but I was alone except for the home nurse, and on a feeding tube and IV for a while. At one point the Nurses and home care people were dropping in, we gave them keys.
I had my touchstone items too.
I have 4 bird feeders outside my window. I'm sure my son was tired of me calling him to fill them, but it made him visit me!
I think the hardest part was going from a healthy 59 yr old outdoorsman to a 60 year old deaf guy who walks with a cane.
I know we have two different health care systems. Here they start with the homecare nurses and people quick, they want the hospital bed back if possible. No one is making a profit if you are there, at least directly. (Dr.s and nurses always get another patient)
I still kid people I had a full blown dispensary, after all was done I had 2 huge boxes of supplies I donated to one of the hospices. (Over 500 4" square pieces of gauze individually wrapped. Fancy tape.
I care for my parents now. A nursing aide baths my Mom and Monday and Thursday. That's 'free'. They assess her every 4 weeks, and my Mom wants them to STOP asking those stupid questions.
I hope you can figure out ways to make things easier for everyone. It's a very difficult thing when you see the mirror at the end, your life starts going by in slowmotion over your shoulder and you don't want to get so close so as to break the mirror. Because although no one admits it, the other side is just over there. And on most days one would rather stay. I had a lot of other days.
John Conley
Musica est vita
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Quote:
Thanks. Complications, the doctor signed release forms but the 'intensive nursing care facility' is releasing her "against medical advice" - hopefully that's just a CYA phrase for lawsuit avoidance (Arlene wouldn't sue anyone anyway).
Against Medical Advice (AMA) is not just a "CYA" thing. It means that in the best judgment of the providers there are legitimate medical reasons for someone's continuing to be under inpatient care. There is a lot to be said for being in one's own environment. There is also much to be gained by doing what the nice people in the white coats tell you.
I hope this works out, but please be sensitive to anything that would indicate a return to inpatient care. If she was being released from subacute care, that would be one thing. Anything medical with the modifier "intensive" deserves special attention, IMO.
Richard
"My primary musical instrument is the personal computer."
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What confuses me is that the doctors released her, but the nursing care facility released her AMA (Against Medical Advice). Didn't they confer first? Who shall we believe?
She seems to be doing OK so far. She still has that huge neck brace on, and probably will have it on for months. She has a walker and uses it to move around her apartment "just in case". We've stocked her kitchen with easy to prepare and ready to eat food, and we spend as much time with her as we can.
Fortunately she has good medical insurance. Besides for Medicare her husband retired from the U.S. Military so she has the widows benefits.
Personally, I'd like to see the US go to nationalized medicine with a system similar to France and Taiwan -- they seem to have made the best judgments. But that's a political hot potato so this is not the forum for that debate. Fortunately, she's covered and can make the co-pays.
Arlene is the only parent left that Leilani and I have. Mine are both gone. It's sometimes a little sad knowing our generation is next in line. But there is nothing we can do about that except to try to enjoy every day to it's fullest.
Giving of ourselves to help Arlene is sometimes wearying, but it is also joyful to be able to help someone you love.
Bob "Notes" Norton Norton Music
https://www.nortonmusic.com
100% MIDI Super-Styles recorded by live, pro, studio musicians for a live groove
& Fake Disks for MIDI and/or RealTracks
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I have some empathy about parent loss since Pauline lost her mom (the last of both of our parents) a couple of years ago. When we lose a parent, it makes us admit to our own mortality---something none of us like to do.
Stan
Cornet Curmudgeon
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True. We spend most of our life blissfully ignoring our mortality. Then something happens like the loss of your parents to temporarily jolt most of us into reality again.
When I lost my mother, I was talking about it with a patron at a Yacht club where we often perform, and she agreed about the shock but remarked that if I thought that was difficult, just wait until you lose a sibling.
Life on earth is fragile. Although we would all like to believe in some afterlife, there is no proof. So for me the secret is to live each day to the fullest and enjoy it as much as you can while living a life that will get you to the 'good place' if there is indeed an afterlife like the clergy have all promised us.
So far - so good with Arlene at home. She spends a lot of time in an easy chair watching TV, but then if I had her challenges, I'd probably do the same. With the neck brace, she can't look down to read and car rides are risky. She of course can't drive yet, but an accident, (even something like being rear-ended at a stop light), with her still healing vertebrae could leave her paralyzed from the neck down.
Good news, she has gotten enough sensation back in her left hand to be able to pick moderate sized things up without looking.
Thanks again for all your prayers of support and your patience for the new disk release.
Bob
Bob "Notes" Norton Norton Music
https://www.nortonmusic.com
100% MIDI Super-Styles recorded by live, pro, studio musicians for a live groove
& Fake Disks for MIDI and/or RealTracks
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Glad to hear of the continued progress of your mother in law Notes.
Did it ever cross your mind to have a big sale as regards your midi disks?
Even selling the lot for $100 to each customer would I'm sure take in $30k or $40k for you, would only need 300-400 customers.
musiclover
Last edited by musiclover; 12/19/11 03:15 PM.
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Quote:
Glad to hear of the continued progress of your mother in law Notes.
Thanks. All the prayers and well-wishes are greatly appreciated.
On the question about running a sale:
I run a constant sale on my disks. See http://www.nortonmusic.com/e-delivery.html for details.
You can save hundreds of dollars if you purchase enough disks.
This allows you to 'roll your own mega pack'. You only get the disks you want.
Actually, as a small business owner, I don't make that much per disk. I have flat-rate monthly costs like magazine ads, web hosting, shopping cart, insurance, and so on plus every sale I make both a flat fee and percentage of the sale goes out to the Visa/MC authorization company, the Visa/MC merchant's account, and a flat rate to my subcontractors. In addition, I have business licenses and by living in the USA self-employment tax on every dollar I make.
But I'm not complaining. I really enjoy doing this, along with my other 'main' job, being a performing musician. Although it is very time consuming (I haven't watched one single TV show since the 1980s) it doesn't seem like work. It's just what I do. And I'd rather do music than watch TV anyway.
So if you want a sale, go shopping. My shopping cart will automatically give you the discount price when you add the second item to the cart.
Notes
Bob "Notes" Norton Norton Music
https://www.nortonmusic.com
100% MIDI Super-Styles recorded by live, pro, studio musicians for a live groove
& Fake Disks for MIDI and/or RealTracks
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One big illness, and you'd better learn to like tv. I got sore fingers from playing keys, and I still can't blow very well, my neck is like a petrified tree trunk from radiation, and many days I have to write down a score and decide if I should be behind the wheel of the car. But TV has become a refuge. We talked about ditching the cable, and there are only 4 HDTV over air things here, but I just am not ready for that. I'm not a huge fan of a lot of tv. But with a good sense of humour and lots of channels heck, even the Discovery Channel and the Nature stuff is great. Documentary channels, Swamp people, direct from the bayou, American loggers what a laugh. I have books, music, CD's Dvd's music gear, and I still end up doing 3 hours a day of TV. And to think the only thing I saw for decades was hockey night in Canada, some Canuck football games and the odd Jays game. I think I missed the pawn shop shows in the 60's. LOL I sat in the same chair, all day, 8 hours a day, hooked to a feeding machine, at home. What else was there to do?
John Conley
Musica est vita
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